Eyes down for Ben and Sam at Tilney St Lawrence bingo night

Bourne parents  Owen and Anna Rogers with their children Lily (7) Ben (9) and Sam (5). They have set up an MD awareness charity EMN-160901-193020009
Bourne parents Owen and Anna Rogers with their children Lily (7) Ben (9) and Sam (5). They have set up an MD awareness charity EMN-160901-193020009

An aunt is organising a prize bingo evening to support her two nephews after they were diagnosed with muscular dystrophy.

A day pass for the Sandringham estate and a tour of the Houses of Parliament are among the items up for grabs at the event to be hosted by Paula Galley, from Tilney St Lawrence, next month.

The event is being held in aid of Forbenandsam, a charity set up by Mrs Galley’s sister, Anna Rogers.

The organisation was launched after Mrs Rogers’ sons, nine-year-old Ben, who was born at Lynn’s Queen Elizabeth Hospital, and Sam, five, were diagnosed with Duchenne muscular dystrophy last November.

The condition affects around one in every 3,500 boys and, on average, patients are only expected to live for around 25 years.

Mrs Rogers, who now lives in Bourne and set up the charity with her husband Owen, are now hoping to raise awareness of the condition, as well as fund research into potential cures.

They hope to be able to accelerate progress in the development of a new technique known as gene editing, where faulty or duplicated genetic codes can be cut out in order to avoid conditions such as Duchenne from developing in the first place.

Meanwhile, Mrs Galley hopes the proceeds of the bingo session will help Ben and Sam to live with the effects of their condition a little more easily.

She said: “We want to buy a hydrotherapy pool which helps their muscles. It helps them walk for longer and takes the weight off their feet.

“I just want to support my sister in this hard time.”

The bingo will be held at the Tilney St Lawrence village hall on Thursday, April 7, with doors opening at 6.30pm

Prizes available on the night will include a trip for two to the Houses of Parliament, provided by MP Sir Henry Bellingham and a day pass for the Sandringham Estate.

Other items up for grabs during the evening will include a voucher from the Moda hair salon in Lynn, a Marks and Spencer food hamper, a fruit basket, a Tassimo coffee machine and a car cleaning muck off kit from Wilco in Wisbech.

More information about the charity can be found online by visiting forbenandsam.com.