King’s Lynn group raise four figures for baby with rare skin condition

King's Lynn GMB union branch to present cheque to Leia Brinton for baby Reggie ANL-160914-122428009

King's Lynn GMB union branch to present cheque to Leia Brinton for baby Reggie ANL-160914-122428009

A Lynn-based group has donated a four-figure sum to support a one-year-old boy who has a rare skin condition.

Reggie Brinton suffers from the congenital condition Ichthyosis, which creates itchy and painful skin that sheds every 12 hours.

His mum Leia, from Emneth, launched an appeal earlier in the year to buy a special bath to make her son’s life easier.

So after a member of the Lynn No.1 branch of GMB union, who also has a skin condition, brought Reggie’s case to the attention of the group, they decided to start fundraising to help him.

Les Thurlow, a member of the GMB, said that after fellow member Stan Marmont presented the idea to the group, various branches from across the region donated and completed car boot sales to raise a final total of £2,300 to present to Miss Brinton.

Mr Thurlow added that they gave the cheque to Reggie’s mum on his first birthday, Tuesday, September 13, to make the presentation extra special.

Miss Brinton, who is nearing on her £10,000 target for the Microsilk bath, was “very pleased”, Mr Thurlow said.

A post on Lynn GMB’s Facebook page said: “Many thanks to all who have donated and who have helped in the many fundraising appeals we have done. Big thanks also goes to Stan Marmont who brought this very deserving appeal to our attention.”

Miss Brinton has received anonymous donations, as well as cheques from other groups in the area, and has organised a number of fundraising events in the past, including a bingo night.

Mr Thurlow added that, besides Miss Brinton’s efforts to gather the money for the special bath, she is also on a mission to educate others about the condition.

In March, Miss Brinton said: “I would really like to raise awareness of Ichthyosis. The doctors at Lynn had never seen it before.”

The mum has to keep Reggie moisturised every two to three hours – so the pair are lucky to get more than a few hours sleep each night.

The Microsilk bath, which is only available in America, would make a huge difference to Reggie’s life by giving him smooth and comfortable skin for days.

To support go to: www.gofundme.com/reggiesmsbath