Spiderman hand transforms life for Pentney’s Miley, 4

Miley Allen with her new prosthetic hand. ANL-150316-083058009
Miley Allen with her new prosthetic hand. ANL-150316-083058009

A Pentney girl born with a rare condition is getting used to her new Spiderman hand thanks to new technology.

Miley Allan is thrilled with the Raptor Reloaded 3d hand which is changing her life.

The four-year-old was born with a quarter of her right hand and some nubbins of skin and soft tissue due to rare condition Symbrachydactyly. This affects on in 32,000 births.

Her parents Daniel Allan, 31, and Michelle Kendle, 28, of Harvestile Lane, are thrilled to watch the youngster’s progress with the hand, which was created by the e-NABLE volunteer Drew Murray.

Miss Kendle said: “Miley had asked when her hand is going to grow, which broke my heart.

“Drew deserves a medal to have done all of this for free.

“Miley’s face was a picture when she first used it.”

The problem was highlighted during the 20-week scan when it appeared there was no movement with Miley’s hand.

She was born in an emergency caesarian on July 8, 2010, in Lynn’s Queen Elizabeth Hospital after she went into cardiac arrest.

When she was six months old, plastic surgeons at Norfolk and Norwich Hospital removed the nubbins and also referred her to Great Ormond Street Hospital when she was one.

Surgeons had offered to transplant Miley’s toes onto her hand but her parents decided against the operation as the youngster would need to learn to walk again.

Miss Kendle said: “She gets around most things and she has never let it stop her from doing anything.

“Before having the prosthetic hand, she could not ride her bike as she didn’t have equal length in both arms. She now wants to learn how to ride a bike.”

Last year, the couple learned about the e-NABLE group, where volunteers use 3d printing to make mechanical hands.

The charity introduced the family to Milton Keynes man Mr Murray, who was able to create the plastic and elastic hand, in her favourite Spiderman colours.

Miley’s hand fits into the device, which she controls via movement in her wrist.

Occupational therapists from Norfolk and Norwich Hospital will soon be helping the youngster get used to the hand.

Mr Murray has agreed to make further hands for Miley as she grows.

Miss Kendle is now hoping to raise awareness of e-NABLE, which was formed after an American prop maker and a South African carpenter joined forces to create the first device.

She said: “I want to raise awareness that there are people out there who will help.”